Last couple of days we've been camped out at my parents' house. People are sleeping on couches or on the floor wherever they can. My brother Tim (pictured above) has not left the house since he arrived; he wants to stay close to our mom. His wife Kelly and two boys are flying out tonight which will be good.
Yesterday I was pretty discouraged. I managed to go for a run around 10:00 pm for an hour and when I got back I felt normal for the first time all day. Unfortunately, everyone was asleep.
It's hard to be here, but its also hard to be away. We're all just waiting and there's not much we can do at this stage. Nurses from the hospice are here around the clock and that's been much appreciated. They are doing the best they can to keep my mother comfortable. But she's not responding much anymore. I think she can still hear us and once in a while she will say something, but mostly she is resting.
Her breathing has become a noisy death rattle due to retained secretions in the upper respitory area. Her breathing is also irregular with deep breaths with long pauses, known as Cheyne-Stokes respiration. I think she is close to the end.